Hydrocephalus Association’s (HA) Inaugural Los Angeles WALK

Friday, 09.27.2013 / 1:10 PM / Los Angeles Kings | News
LAKings.com

LOS ANGELES – Several members of the Los Angeles Kings – including Jonathan Quick, Jarret Stoll, Robyn Regehr, Justin Williams, Colin Fraser, Alec Martinez and Kyle Clifford – are scheduled to join close to 500 walkers representing local families, schools, corporations and organizations as they mobilize for the Hydrocephalus Association’s (HA) Inaugural Los Angeles WALK this Sunday at Exposition Park in Los Angeles.

Kings players will walk at the inaugural family-friendly event, which hopes to raise $100,000 that will be used to support the association’s critical research initiatives and current education and outreach programs. HA is the largest non-profit patient advocacy organization dedicated solely to supporting individuals living with hydrocephalus.

“There is no cure for hydrocephalus and the current treatment requires brain surgery. We need to raise money for research to find a cure and improve treatment options,” said Kings Director of Community Relations and the Kings Care Foundation Jennifer Pope, the event’s co-chair and mother to one-year-old Charlie, who was diagnosed with hydrocephalus at six months.

Hydrocephalus is characterized by the abnormal accumulation of cerebrospinal fluid within cavities in the brain. More than one million Americans live with hydrocephalus. About two in every 1,000 babies are born with hydrocephalus, it is diagnosed in the senior population and people who sustain even moderate traumatic brain injuries (TBIs) can develop the condition. The Hydrocephalus Association began funding research in 2009 to seek better treatment options and, ultimately, a cure. Since then, HA has committed well over $3 million to fund critical research initiatives.

The walk begins at 9:30 am. Registration and check in are open at 8 a.m. The event, which will be MC’ed by Christine Devine from Fox 11, will also feature the LA Kings Ice Crew and Chariot, the Laker Girls, LA Galaxy’s Cosmo and DJ VickOne. Participants raising $50 or more will receive an HA WALK T-shirt and those who raise between $250 to $10,000 or more will win prizes ranging from a sweatshirt to a Soundlink Bluetooth Mobile Speaker.

Families with hydrocephalus are invited to tell their story in poster format to be displayed on Ambassador Avenue. Please contact Jennifer Pope at jpope@lakings.com for more information. There is still time to register to participate as a team or an individual walker by visiting http://walk4hydro.kintera.org/losangeles. Interested individuals can also call the HA national office at 888-598-3789 extension 12, or email walk@hydroassoc.org.

About the Hydrocephalus Association

Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus. More than 60 percent of HA's funding comes from individual donations and events, and approximately 35 percent comes from foundation and corporate grants. The Hydrocephalus Association's mission is to eliminate the challenges of hydrocephalus. For more information, visit the Hydrocephalus Association Web site at http://www.hydroassoc.org or call (888) 598-3789.

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